Guildford and South Surrey Branch

 

News 2019

 

Ann & Dave Donovan Donation

Ann & Dave Donovan, long-time members of the branch, lived in Stoke D'Abernon until two years ago when they moved to Leeds to be closer to their family. Ann had suffered from Parkinson's for many years and unfortunately passed away in October 2018.

 

Dave is living in sheltered accommodation and is a keen and talented wood and metal worker. Over the years he has gathered many tools, large and small but has now decided to rent a small workshop nearer to home. This meant many of the tools had to be sold.

 

The family would like the Guildford Branch to have the money raised (£560) from the donations given for the tools.

 

Upcoming Workshops

Surrey Hills Rehab has organised 2 workshops this autumn, which are of particular interest to people affected by Parkinson’s.

 

The workshops will be held at Unit 61, Smithbrook Kilns, Cranleigh. The charge is £15 per family (carers encouraged).

 

More information can be found here

 

Get It On Time Petition

People constantly tell us about the impact of not getting medication on time in hospital – stress, anxiety, immobility, severe tremors. Nearly two-thirds of people living with Parkinson's didn’t consistently get their medication on time in hospital.

 

Unfortunately, the majority of hospitals just don’t comprehend the urgency of getting medication on time, every time.

 

When you sign our petition, you’re calling on the NHS to urge hospital trusts and health boards to introduce 15-minute mandatory Parkinson’s training. They’ll learn how important it is to Get It On Time.

 

You can sign the petition here

 

Research opportunity: an online survey to investigate physiotherapy referrals within the UK in people with Parkinson's

Deadline 30 November 2019

Olivia Gillam of York St John University is aiming to understand to what extent people with Parkinson's utilise physiotherapy resources and if this is linked to their physical symptoms. You can find out more about this research and participate if you would like through this link

 

The Critical Path For Parkinson’s

This project is a really exciting collaboration which include pharma companies, universities, charities and experts from the UK, USA and beyond. Parkinson's UK co-funds this with the industry partners.

 

The Guildford and South Surrey Branch had a key role in getting the project off the ground as the first 3 years were funded by a legacy donated from the branch. Parkinson’s UK are always aware that this fantastic project would not exist without the funding from the Guildford and South Surrey Branch.

 

Information about the project can be found on Parkinson’s UK website here.

 

An article from a recent Progress magazine gives an overview of the project

 

Your life, your services 2019

Deadline 25 October 2019

The annual Parkinson's health and care services survey is now live. Please help to promote it to all local group members and anyone else affected by Parkinson's within your networks. As this is the final survey for this strategic period, its really important to get a high response rate so please do all that you can to help.

 

The survey is completed online by following this link

 

Research opportunity. LENS-PD – Learning Effective New Strategies for anxiety in Parkinson’s.

Deadline 30 November 2019

The aim of the research is to better understand worry in order to develop effective psychological treatments to reduce worry and anxiety for people with Parkinson’s.

 

Commitment: Completing an online screening questionnaire followed by a short phone call from the research team. If you are eligible you will be randomly assigned to one of two research conditions. You will be given access to the online platform to complete a series of online sessions across a 4-week period with two follow up assessments at 1 and 3 months.

 

You can find further information about this opportunity on the Parkinson's UK website

 

We Are Undefeatable campaign

Have you seen the new We Are Undefeatable campaign? We’ve partnered with 14 other leading health charities with funding from Sport England to launch the ‘We Are Undefeatable’ campaign - encouraging people with long-term health conditions to be active.

 

You are twice as likely to be inactive if you have a long-term health condition, but being active can help to manage over 20 long-term conditions and it’s especially important for people with Parkinson’s. It can slow the progression of symptoms and can even be as important as medication in helping people to take control.

 

You’re already a crucial part of delivering numerous and varied opportunities for people with Parkinson’s to stay active, and with the campaign set to feature in England on TV, radio and online, many more people will be encouraged to build physical activity into their lives. So, the campaign is a great opportunity to talk about the activities on offer locally - why not reach out to someone new to share ‘We Are Undefeatable’ and talk about how important being active is for people with Parkinson’s - we know there isn’t a one-size-fits-all approach and the best exercise to do will depend on people’s individual condition, but the message is the same for everyone – go for it!

 

Take a look at www.weareundefeatable.co.uk for more information on the campaign as well as a chance to see the campaign video. We’re sharing the campaign far and wide, and working alongside you and other charities we can inspire and support more people to get active - whatever form that takes.

 

Sharon Blight - Bowls Champion!

Sharon, who was forced to give up tennis after an accident, joined the Aldershot Underwood Bowling Club. After seven years she has now become Champion.

Sharon Blight

 

Sharon says:

“I Had to overcome the sheer inner emotions of belief, not only for the match itself, but I was playing the no 1 player in the club who happens to be my mother. She is a very good player, an experienced county standard player, who does not give in.

 

I had to win this match! I have always been runner-up so it was an emotional boost and I am now No.1 in the club which secures entry to the next level of play in the North Hampshire zone."

 

Sharon was diagnosed with Parkinson's Disease ten years ago and has worked tirelessly on behalf of Parkinson's UK ever since.

 

Research into “freezing” in Parkinson’s sufferers.

A presentation to the Guildford and South Surrey Branch meeting on 22 May 2018. Dr Will Young (Brunel University)

Full report here